Dear Friends of ECNV,
In this season of giving and gratitude, thank you for supporting ECNV’s work. People with disabilities want to live independently and fully participate in our communities just like everyone else – and with your support, ECNV is proud to be making that possible in Northern Virginia.
Having known ECNV and its impressive achievements over many years, I am thrilled to have been appointed its Executive Director at an exciting time of growth and development. This year ECNV assisted hundreds of people in our region with personal assistance services funded through Medicaid waivers that enable them to live in their communities instead of institutions. Our staff Peer Mentors are helping people to find work and accessible housing, and develop independent living skills. ECNV Travel Trainers are riding the rails and buses to teach consumers with disabilities how to do so independently. You’ll find ECNV advocates participating at housing and transportation meetings throughout our region to ensure the disability perspective is heard. And our staff is active in assisting people to move from nursing homes and institutions back into the community.
Let me share just one example of what ECNV’s work can achieve. Diana, a 45 year-old professional artist with a spinal cord injury, contacted ECNV about transitioning from a nursing home to her own apartment. A team of our Peer Mentors, advocates and a transition coordinator helped her obtain rental assistance and locate and move to her own apartment. ECNV connected her to personal assistance and other needed supports. After 18 months in the community, Diana, with ECNV staff support, has gained the knowledge, skills and confidence to live on her own and is re-establishing her career. She now assists ECNV staff on advocacy efforts aimed at securing more rental assistance vouchers from Fairfax County so that others in nursing homes have the same opportunity to return to life in their community. In a meeting with the Chairman of the county Board of Supervisors, Diana said, “I am immensely grateful for the day that I found ECNV because with their help and persistent belief in me, I have been able to regain my life. Now I want to help ECNV to find the resources to help others in nursing homes regain their lives and their freedom.”
With your help, ECNV will keep doing all we can to help people like Diana achieve, maintain and maximize their freedom.
Please join ECNV and support our work as a $50 ENDependence Advocate – or with the contribution that you can best afford today.
- $15 Friend of ECNV
- $50 ENDependence Advocate
- $100 Champion of Independent Living (CIL)
- $_________ Self Advocate (Your choice of amount)
It is easy to make a donation to ECNV today with a check made payable to ENDependence Center of Northern Virginia and mailed to our office at 2300 Clarendon Blvd., Suite 305, Arlington VA 22201; or by using PayPal to make a donation via our website at http//www.ecnv.org (ECNV can also accept credit cards over the phone at 703/525-3268).
Our core and auxiliary services are free of charge and our communications are provided to all community members – so your contribution will benefit many others.
The staff and Board of ECNV join me in thanking you for your interest in our work and for sharing our commitment to enhancing independent living in our region.
PS – Please return the above donor form today so you can be eligible for a 2013 tax deduction for a charitable contribution!
November 21st — 9:30 am
Dirksen Senate Office Building, Room G-50
YOU MADE A DIFFERENCE!
Thank you to everyone who attended the November 5th hearing! Based on YOUR incredible show of support, Chairman Menendez has scheduled the second hearing on November 21st in a larger room to ensure that advocates can be present and show the Committee their support in person!
Secretary of State John Kerry will be a witness in this important hearing, among others.
You can RSVP for the November 21st hearing here! This will help us tell the Committee that the disability community is behind this treaty!
WE NEED YOUR HELP! WE CANNOT STOP NOW!
The Marathon continues!
Your voices must continue to be heard NOW!
Senators Menendez and Corker and the other Foreign Relations Committee members need to continue to hear from YOU and know that you support the CRPD! It will continue to show the Foreign Relations Committee that the community is behind this treaty and that we want the process to KEEP MOVING FORWARD!
Visit our new citizen action portal, www.disabilitytreaty.org, to CALL these target Senators on the Foreign Relations Committee! Click the “We Support CRPD” icon above! Share it everywhere! Post it on your website, Facebook, and Twitter! They need to hear from our movement now or we will not succeed.
You can also contact:
Senator Corker at 202-224-3344 and
Senator Menendez at 202-224-4744.
Are you tired of being told you have to book an accessible taxi a day in advance? Are you sick of two-hour, or longer, waits for same day service?
Whether you use an accessible taxi, or a sedan, do you think taxi fares are too high now to warrant another fare increase? Then it’s important that you attend an upcoming public hearing on taxi service.
|Consumer Protection Commission (CPC) public hearing about allocation of proposed taxicab certificates and a proposed fare increase|
|Tuesday, November 19, 6:30 pm|
|Conference Rooms 4 & 5, Fairfax County Government Center, 12000 Government Center Parkway, Fairfax, 22035|
We need to provide as much testimony as possible so the CPC understands the effects of the proposed changes on people with disabilities and seniors.
If you can’t testify in person, testimony can also be submitted by sending an email to email@example.com or by letter to Consumer Protection Commission, 12000 Government Center Pkwy, Suite 433, Fairfax, VA 22035. Testimony submitted by email or letter should be received by 4:30 p.m. on November 19. For special accommodations, contact Heidi Baggett at 703-324-5957, TTY 711, FAX 703-324-3900.
from a NCIL email:
Action Alert: Senate Foreign Relations Committee Hearing on the Disability Rights Treaty Scheduled for Next Week!
Senator Menendez and Senator Bob Corker, the Committee’s Ranking Republican, need to hear from everyone. They are logging all calls and contacts made, state by state. Your participation will determine whether we achieve passage of the treaty.
The United States International Council on Disabilities (USICD) has launched a new Citizen Action Center to make it easier than ever for you to reach your Senator with the calls, letters, emails, petitions, and social media that will make the difference in this fight: www.disabilitytreaty.org.
The Marathon is almost over. The end is in sight. Now is the time for our voices to be heard. Now is the time for the Senate to feel the power of our Movement. We demand ratification of the UN Convention on the Rights of Persons with Disabilities!
We must show the Foreign Relations Committee that we are a strong and diverse community that supports the treaty. Consider attending the hearing if you are able! We need a packed room to show the Foreign Relations Committee that the community is behind this treaty.
About the Hearing
- Title: Senate Foreign Relations Committee Hearing on U.S. Ratification of the Disability Treaty, Convention on the Rights of Persons with Disabilities
- Time: November 5, 2013, at 2:30.
- Place: Dirksen Senate Office Building, Room 419 Please Note: Senate Dirksen 428 will be an overflow room should SD-419 reach capacity.
This is my third year writing a blog entry in honor of Breast Cancer Awareness Month. I’m proud to say that I have been cancer free for the past three years! As I have mentioned in previous blog entries, early detection is the best way to prevent breast cancer from developing into something requiring significant treatment that is often difficult and painful. But for people with disabilities, mammograms are often a challenge because of the design of the equipment and for those in rural areas it is often difficult to get to a facility with adequate mammography machines. However, it is vital that women with disabilities, and others that that have a history of breast cancer in their family get a regularly scheduled mammogram.
I had the honor of being chosen to speak at the local American Cancer Society, Making Strides against Breast Cancer walk just a few weeks ago. You can listen below to my remarks, but the bottom line is that cancer does not discriminate. It does not matter whether you are disabled or nondisabled, young or old, black or white, straight or gay; cancer can get you.
There is a new mammography machine that is FDA approved and out on the market that is very accessible and will make it much easier for individuals with disabilities to get a mammogram. The design of the machine has it come to you so you do not need to try to maneuver into the mammography machine. However these machines are very expensive and not prevalent in the USA. I’m working hard to try to get one in the Washington DC area. But it takes money and passion and connections. I believe in the cause and I am working as hard as I can to make it happen. As I work on this project, I am hoping that women with disabilities will heed this call to action and regardless of the difficulty in getting a mammogram, will do it. It is much better than the alternative of getting extensive treatment for more advanced cancer.
There is still time left in October. Schedule your mammogram now!
Youtube video of speech (the only captioning currently available is Youtube’s automatic captioning): http://www.youtube.com/watch?v=hIwUCButAE0&feature=youtu.be
By Sheri Denkensohn
Metro’s Riders’ Advisory Council is looking for riders to fill available positions on the volunteer council. Positions are available for residents in the District of Columbia, City of Alexandria, Arlington County, Fairfax County, and Montgomery County. There is also one at-large position available to a resident of any jurisdiction served by Metro.
The 21-member council is made up of six individuals each from Maryland, Virginia and the District of Columbia, two at-large members and the Chairman of Metro’s Accessibility Advisory Committee. The Council advises the agency’s Board of Directors on issues affecting Metrobus, Metrorail and MetroAccess service. It was created in December 2005 to improve communications with riders.
Individuals on the Riders’ Advisory Council represent a cross-section of Metro’s riders from across the region. The Council includes people with different riding patterns, people who use Metrobus, Metrorail and MetroAccess, transit-dependent people, people with disabilities, people who travel both short and long distances.
Persons interested in applying should complete the online form or complete and mail an application. Applications are also available at Metro sales offices at Metro Center Station, Anacostia Station, Pentagon Transit Center and Metro Headquarters (600 Fifth St NW).
Applications must be received by 5:00 p.m. Monday, October 28. Applicants must be regular riders of Metrobus, Metrorail and/or MetroAccess.
More information about the Council can be found here.
Metro employees, contractors or elected officials are not eligible to apply. All positions are unpaid.
For Immediate Release
Media Contact: Anna Nissinen, Public Affairs and Communications Officer
A Soft Voice in a Noisy World: Author Karl Robb to Speak October 28 in Leesburg
Living with Parkinson’s disease will be the focus of a presentation scheduled for 7:00 p.m., Monday, October 28, 2013, in the Lovettsville Room of the LoudounCountyGovernmentCenter, 1 Harrison Street, S.E. in Leesburg. The event will feature Karl Robb, author of the memoir, A Soft Voice in a Noisy World: Making the Best of a Life with Parkinson’s Disease, and his wife, Angela Robb.
Karl Robb will discuss his experience with Parkinson’s disease, which he has had for over 20 years. Angela Robb will discuss her role as the caretaker of someone with a disability.
The presentation, which takes place during Disability Awareness Month, is hosted by the Loudoun County Disability Services Board. The at-large advisory body is appointed by the Board of Supervisors and serves as a resource to the Board by identifying and advising on issues of importance to people with physical and sensory disabilities, their families and caregivers. More information about the Disability Services Board is online at www.loudoun.gov/dsb.
If you require a reasonable accommodation for a disability in order to attend and participate in the event, please contact Catherine Motivans at 571-258-3282 or by email at firstname.lastname@example.org. Three business days advance notice is requested.