Taking Self-Talk from Lethal to Life-Affirming

Like many, I was saddened by the recent death of Robin Williams. I won’t attempt to speak to what he experienced in his last days. But I felt the need to share some thoughts and what helps me manage my depression. Everyone’s experience is different.

Continue Reading August 29, 2014 at 3:11 pm Leave a comment

2014 NCIL March and Rally

Check out the pictures from the NCIL march and rally!

Continue Reading August 15, 2014 at 10:58 am Leave a comment

Planning Your Perfect Accessible Vacation

By Ed McEntee, ECNV Peer Mentor

Ed McEntee in Hawaii

Ed McEntee vacationing in Hawaii

Vacation time – for people with kids it usually happens between June and August, but really it could be any time. In either case, the prep work is the challenge. Here is what you need to know to plan your accessible vacation.

  1. Deciding On Your Destination. This should be an easy thing to do, but having a disability can make it more complicated. While many hotels say they are accessible, you have to do a little investigation before committing yourself. Some hotels call themselves “accessible” if you can get a wheelchair in the front door, but there may be steps inside the building. Likewise, there are hotels that identify themselves as accessible if they have grab bars in the bath, but do not have enough space for a wheelchair to fit through the door to access those assistive devices. You should always call the hotel and make sure they comply with your definition of accessible. I find that national chains are usually good with accessibility and can provide satisfaction. In the United States the American Automobile Association (AAA) has useful information about accessible travel. As a member, you can get access to mapping services and guide books that have valuable information (by state) for hotel accommodations and accessibility. They feature hotel addresses, phone numbers, and interesting tourist sites to visit. Go to www.aaa.com for membership information.
  2. Support Services. A person with physical disabilities might need Personal Assistant Care services, while a person with low vision might need magnified reading devices. Deaf persons might need access to devices that would help to interpret speech. To find support services you can do a computer search for a nearby Center for Independent Living (CIL), State Department of Rehabilitation Services, or service providers having national recognition.
  3. Traveling. Airplanes and trains are often the go-to modes of transportation for traveling long distances quickly. But sometimes driving can be the easiest way to travel, especially if you have a disability. Having your own accessible van can be very costly, so you may want to consider a rental. While this is not necessarily cheap ($1,000 -$1,300 weekly with unlimited mileage), it may be cheaper than plane tickets for two and you have fabulous mobility in and around your vacation area. One of the national companies providing great service and support is Wheelchair Getaways (www.wheelchairgetaways.com). For a fee, they will drop the vehicle off at an airport or any other destination you provide and pick it up at any place you decide. In my experience, the vans are clean, well-maintained, and accessible with an automatically-retracting ramp. Another wheelchair van rental company I have had success with is Mobility Works (www.mobilityworks.com). There are quite a few options, so do some research and find the company that works best for you.
  4. Accessible Cruises. My sole experience on a cruise ship was with Royal Caribbean, Adventure of the Seas (http://www.royalcaribbean.com). Each deck had at least two cabins accessible to people with physical disabilities. My cabin had a balcony (paid extra for that), a queen-sized bed, and a fully accessible bath with a fully accessible shower. I had no problems getting throughout the ship since it had been retrofitted with ramps and automatic door openers on every deck. The only place on the ship that was inaccessible was a chapel at the very top of the ship. However, not all things are perfect in paradise. Prior to sailing, I attempted to see if their tours around the islands were accessible. Unfortunately, their version of accessible was not quite fit for wheelchair users. I was quite disappointed, especially when I found that the ship was deserted during the day when everyone else went out on tours. There are many cruise lines with different accessibility features, so once again, it is important to do your research. Princess Cruises (www.princess.com) boasts an “award winning program” for accessibility on their website, and Celebrity Cruises (www.celebritycruises.com) also lists many accessibility features on their website. Always do your research and ask questions before you book!

Although challenges are inevitable, planning ahead can make traveling a whole lot easier. Once you’re relaxing by the pool or exploring a new city with your family, the extra planning becomes worth it.

 

ECNV’s blogs are the personal experiences of individual contributors and should not be seen as endorsing a specific brand. We encourage people to conduct their own research and use their best judgment.

August 11, 2014 at 1:20 pm 2 comments

“Oscars of the disability world.”

During the six years I served as AARP’s disability community liaison, I enjoyed the opportunity to serve on the American Association of People with Disabilities Leadership Awards Gala Steering Committee. I was mightily impressed by the team that annually worked to raise six – and then seven – figures in donations that became the core of the national nonprofit group’s annual operating budget. The event itself has always been the leading cross-disability event in the DC region. I’ve heard it called the “Oscars of the disability world” and that’s a fair summary. Lots of the big names in our field attend, and the host venue always has a swanky aura. The awards are central to the event and the winners are always impressive.

 Swedish Ambassador Bjorn Olof Lyrvall accepts AAPD’s International Ally Award.


Swedish Ambassador Bjorn Olof Lyrvall accepts AAPD’s International Ally Award.

This year’s winners included International Ally Award winner Sweden, and Corporate Leaders Procter & Gamble and Google, Inc. The prestigious Paul G. Hearne Leadership Awards were presented to Claudia Gordon, from the White House Office of Public Engagement; HEARD founder Talila Lewis, who has focused on the rights of prisoners who are deaf; and AXS Lab Founder Jason DaSilva. Jenni Gold, producer of the new film Cinemability, received the AAPD Image Award.

ECNV Executive Director Brewster Thackeray with former Congressman Tony Coelho at the AAPD Leadership Awards Gala.

ECNV Executive Director Brewster Thackeray with former Congressman Tony Coelho at the AAPD Leadership Awards Gala.

Another joy each year at AAPD is the chance to catch up with old friends in this glamorous setting. I enjoyed seeing my former National Organization on Disability colleague Ginny Thornburgh, and her husband Dick, the one-time U.S. Attorney General and Pennsylvania Governor. AAPD Board Member Cheryl Sensenbrenner kept remarking on how my look had changed – maybe she just isn’t used to seeing me in a suit. I also was glad to pass my new business card to ADA author and former California Congressman Tony Coelho; years before I had the chance to work with Tony in person, he was a role model to me. He was diagnosed with epilepsy at the same age I was, faced many roadblocks as a result, but never stopped pursuing opportunities to be a leader and support the rights of other people with disabilities. And it was good to catch up with Curt Decker, the National Disability Rights Network head who attended the same tiny upstate New York college I did (albeit a couple of decades ahead of me). As usual, the ushers were “ushing” us out long before I had a chance to say hi to everyone I would have liked.

I was proud to attend this year’s gala along with eight ECNV colleagues and three members of our Board of Directors. We were among the best-represented organizations there. And we were all taking notes, since AAPD’s Gala gives us inspiration as we prepare for ECNV’s own upcoming fundraiser, which will be held June 11 at the Clarendon Ballroom in Arlington. We are fortunate to have several veterans of the AAPD Gala beyond myself, including our Board member Helena Berger who was the longtime AAPD Chief Operating Officer and consultants Jason Mida and Zach Baldwin of Mida & Associates, helping us build our event. AAPD knows what they’re doing and they do it mighty well.

March 21, 2014 at 6:30 pm 1 comment

Vacancies on the Virginia Board for People with Disabilities

board

Apply now to be a Member of the Board                 

Hurry!  Applications are open until April 15 but screening will begin before then; appointments are made by the Governor.  Candidates must submit a resume and complete the online application through the Secretary of the Commonwealth at https://solutions.virginia.gov/OASYS.

Or you can click “apply to be a board member” under the site tools at www.VaBoard.org and be sure to check out the categories under the 2014 Appointment Openings…candidates must complete all vetting questions, as well as provide background information, a resume, and explain why they are applying for a specific seat on a board. For more information about Gubernatorial appointments, visit

https://commonwealth.virginia.gov/applications/gubernatorial-appointments/. It would be helpful if you could also send us a copy of your application and resume so that we can follow up. You can send them to Michal Ketner at Michal.ketner@vbpd.virginia.gov.

March 6, 2014 at 5:46 pm 1 comment

Proposed Fare Increases for ART and STAR Zone 1

Arlington Transit is proposing to increase ART bus fares and the STAR Zone 1 fare. If approved, the fare increases would go into effect on Tuesday, July 1, 2014. This would be the first time that ART has increased bus fares and the STAR Zone 1 fare since 2010.

ART BUS FARE INCREASE

Arlington Transit is proposing to increase the ART base fare from $1.50 to $1.75. The ART discounted fare for seniors, middle and high school students, and people with disabilities would increase from $0.75 to $0.85. The additional revenue generated from the increased fares would help offset increased contractual costs for operation and maintenance and the cost of additional ART bus services.

STAR ZONE 1 FARE INCREASE

Arlington Transit is also proposing that the STAR Zone 1 fare increase from $3.00 to $3.50 per trip. The additional revenue generated from the increased fare would partially cover higher expenses from contractors supplying STAR services. STAR Zone 2 and 3 fares would not increase.

YOU HAVE THREE OPPORTUNITIES TO COMMENT

1) A community meeting on this issue will be held at Central Library on Monday, March 10, from 7–8:30 p.m.

2) A public hearing will be held on Thursday, March 27, at 7 p.m. in the County Board Room located on the third floor of 2100 Clarendon Blvd, Arlington VA, 22201. Visit Arlingtontransit.com/CBMProcedures to sign up to speak at the hearing or to comment online. You may also call the County Board Office at 703-228-3130.

3) Online comment forms are on arlingtontransit.com and arlingtontransit.com/star for those who can’t attend the meetings.

March 5, 2014 at 4:31 pm Leave a comment

Fairfax Voters: Test New Voting Machines and Provide Input

Fairfax County voters will have the opportunity to test new voting machines and provide input at four events being held throughout the county on Friday, Feb. 21 and Saturday, Feb. 22.  The Fairfax County Office of Elections is in the process of replacing its aging voting equipment and is reviewing new machines for ease of use, as well as accessibility for people with disabilities and for voters for whom English is not their primary language.

“We have some critical decisions to make this year on purchasing new voting machines for our citizens,” said Electoral Board Secretary Brian Schoeneman. “This is a rare opportunity to provide voters with a chance to test drive different voting machines and give input on what voting equipment will provide them with the best and most secure voting experience.”

“We are hoping that diverse voters representing all our communities participate in these events,” added General Registrar Cameron Quinn.

No registration or advance notice is required to participate in four of the events.

Friday, February 21:  

Tysons Corner Center Mall, 2 to 4 p.m.
3rd floor food court
1961 Chain Bridge Road, Tysons Corner
Directions

Reston Community Center, Hunters Woods, 6:45 to 8:30 p.m.
Lobby
2310 Colts Neck Road, Reston
Directions

Saturday, February 22:

George Washington’s Mount Vernon, 11 a.m. to 1 p.m.
Robert H. & Clarice Smith Auditorium (enter through the gift shop – no admittance charge for this event)
3200 Mount Vernon Memorial Highway, Mount Vernon
Directions

George Mason Regional Library, 3:30 to 4:45 p.m.
Lobby
7001 Little River Turnpike, Annandale
Directions

For more information on the voting machine demonstrations, contact the Office of Elections at 703-222-0776, TTY 711. Information on elections and voting in Fairfax County can be found at http://www.fairfaxcounty.gov/elections.

February 12, 2014 at 10:37 am Leave a comment

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